Change
While waiting at my recent neurologist appointment, a discussion in the waiting room occurred. Several of the people began asking others when their life changed. Seemed a little odd to me because I...
View ArticleMS today
I intentionally stopped posting to this blog since August because I wanted to see if I could live my life without thinking or should I say overtly reminding myself that I have multiple sclerosis....
View ArticleBaclofen Pump Update
So, today I thought I would give a quick( if you’ve read my posts you know quick isn’t really in my vocabulary. I tend to go on and on) update regarding my baclofen pump. I’ve had my pump now for 1...
View ArticleLiving Today
As I recently stated I have been in a bit of a funk lately. Living with atypical chronic progressive MS is difficult. For so many years I maintained a positive attitude. Not that I don’t have a...
View ArticleThe Double Edged MS Sword
I woke up today. I have twenty-four hours that I did not have before. Those hours may be riddled with atypical chronic progressive MS, but these are my brand new hours. Each day I feel myself gaining...
View ArticleDancing
It is funny that after a few years, okay 5 or more, with MS you get used to the pace of life. For me life has slowed down, dramatically. I am on a completely different schedule than I was before;...
View ArticleThe One Thing
The secret to success is the one thing. This isn’t a new idea, but an effective reminder for me. The one thing for me means the one focus. The one thing I focus on to get me through whether going...
View ArticleGood and Bad
So I have been feeling pretty good lately. I’m not running any races, well I’m not running. I have enough daily energy to do what needs to get done. Essentially, I operate on a low level. That is...
View ArticleMS Improves With Rituxan
Almost four months have passed since completing my first cycle of Rituxan. Admittedly, I was apprehensive about trying a new treatment option. My doctors started treatment using the least problematic...
View ArticleRituxan For Multiple Sclerosis
I am currently sitting in the infusion center as the needle in my arm slowly dispenses Rituxan. I relish this day; looking forward to it like a child anticipating her birthday. After all, its a gift...
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